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Carta dei Diritti delle Persone con Patologia, manifesto delle associazioni

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Covid, UNIAMO a Speranza: priorità vaccini anche per malati rari

Flashmob virtuale, raccolta firme e campagna social per una scuola davvero inclusiva

Covid. Via libera alla ricetta bianca elettronica per i medicinali non a carico del Ssn. Pubblicato il decreto del Mef sulla Gazzetta Ufficiale

Corriere della Sera: “Cavernomi cerebrali, individuato meccanismo che determina la fragilità dei vasi sanguigni”

Invalidità civile, Legge 104 e diritti dei malati rari: online la guida gratuita dello Sportello Legale OMaR

Associazioni in Rete: “Da prorogare anche le esenzioni per patologia in scadenza”

Lavoratori fragili e Coronavirus: Associazioni in Rete scrive all’11a Commissione Permanente di Senato e Camera

Regione Puglia per tutti i Malati Rari: parte app. Accasa

La qualità della vita lavorativa dopo la diagnosi di CCM

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